Contents Preface v Guest Editors vii Introduction x List of abbreviations xiii Palliative care and respiratory disease 1. Definitions and policy 1 Joshua B. Kayser, Kim Mooney-Doyle and Paul N. Lanken 2. The need for palliative care 21 Sabrina Bajwah, Eve Namisango, Daisy J.A. Janssen, Deborah Dudgeon, Anna-Marie Stevens and Jayne Wood 3. Access to palliative care 35 Tim Peel, Lynn F. Reinke and Claudia Bausewein 4. Supporting informal carers 51 Morag Farquhar Symptoms 5. Symptom patterns in populations 70 Magnus Ekström, David C. Currow and Katrien Moens 6. The construct of breathlessness 85 Sara Booth and Robert Lansing 7. Patient and carer experience of breathlessness 102 Ann Hutchinson 8. Mechanisms of breathlessness 111 Dennis Jensen, Kyle Pattinson and Caroline Jolley 9. Measurement of breathlessness 134 Mark B. Parshall and Janelle Yorke ERS monograph Palliative Care in Respiratory Disease Number 73 September 2016